Case Study

From legacy to launch, ArcStone helped the Rosenau Foundation build a brand and website that reflect its dedication to hope and healing.

The Rosenau Family Research Foundation stands as a beacon of hope in the rare disease community, dedicating its resources to advancing treatments and raising awareness for conditions that affect families worldwide. Previously operating as The Legacy of Angels Foundation, the organization evolved its identity to better reflect its expanding mission and growing impact in the rare disease research landscape, focusing primarily on Krabbe Disease while also supporting Cystic Fibrosis research and awareness efforts.

The foundation’s work extends beyond traditional grant-making to encompass comprehensive support for the rare disease ecosystem through strategic partnerships with research institutions, universities, and medical centers. What sets Rosenau apart is their commitment to making research accessible and meaningful to the families it serves, understanding that behind every scientific breakthrough are real families waiting for answers, hope, and healing. This perspective drives their dedication to transparent communication, community building, and ensuring that research advances translate into tangible benefits for those affected by rare diseases.

Our Role

Branding Strategy
WordPress Development
AMO Integration
SEO & Accessibility
Video Production
Ongoing Marketing Support
Analytics & Reporting

The Challenge:

The Rosenau Family Research Foundation faced multiple interconnected challenges that limited their ability to fulfill their mission effectively. Their outdated brand identity, inherited from The Legacy of Angels Foundation, no longer reflected their evolved mission or resonated with their target audiences of researchers, donors, and rare disease advocates. The foundation’s website failed to communicate their current priorities and lacked the modern functionality needed for effective donor engagement and researcher outreach. Perhaps most critically, the foundation operated within a small and somewhat insular researcher network, which significantly limited the visibility of grant opportunities and meant that promising research projects might never discover available funding. The limited digital storytelling capabilities further hampered fundraising efforts and community outreach, making it difficult to share compelling stories of research impact and donor contributions that drive philanthropic support. The organization needed a comprehensive digital transformation to unify their brand identity, expand their research network reach, and create sustainable systems for ongoing growth.

Legacy of Angels Foundation website before ArcStone’s redesign, featuring sections on Krabbe Disease, Cystic Fibrosis, and Newborn Screening.

Our Approach

ArcStone led a comprehensive, multi-phase partnership designed to transform every aspect of Rosenau’s digital presence and marketing strategy. The collaboration began with an extensive rebranding effort that included developing a new organizational name, creating a cohesive visual identity, and crafting messaging that accurately reflected the foundation’s mission and values. A cornerstone of our strategy involved producing a series of powerful video stories that highlighted donor impact, showcased active researcher projects, and featured student involvement in rare disease research, establishing the foundation for a robust, ongoing storytelling strategy.

The technical foundation centered on designing and developing a modern WordPress website fully integrated with AMO, ArcStone’s proprietary member management software, meticulously optimized for accessibility compliance, search engine visibility, and donor engagement. Following the successful launch, ArcStone transitioned into serving as Rosenau’s fractional marketing team, providing comprehensive monthly services including SEO optimization, donor persona development, content strategy advising, detailed analytics reporting, and continued video production for special events and targeted campaigns to ensure sustained momentum and continued growth.

Reviewing The Results

The Rosenau Family Research Foundation now operates with a unified, mission-aligned brand identity that authentically represents their commitment to rare disease research and family support. The modern, accessible, and SEO-optimized website serves as a powerful platform for engaging both donors and researchers, while the strategic video content has significantly enhanced outreach capabilities and visibility within the rare disease community. The integrated storytelling approach has strengthened donor relationships while effectively communicating the foundation’s impact to potential supporters and research partners.

Through the ongoing fractional marketing partnership, Rosenau has experienced sustained growth in their digital presence and community engagement, with monthly SEO optimization improving search visibility and targeted persona development refining messaging effectiveness. Most importantly, the comprehensive digital transformation has expanded Rosenau’s presence and influence in the rare disease research space, creating new pathways for grant visibility and researcher connections while providing scalable systems and strategies that support long-term growth objectives and amplify their mission of advancing hope and healing for families affected by rare diseases.